My feet and hands were amputated after sepsis, says MP

  • By Helen Catt, Isabella Allen and Kate Whannel
  • BBC news

Video Caption, “Your legs and arms are dead”: Craig Mackinlay speaks about losing his limbs to sepsis

Conservative MP Craig Mackinlay returns to Parliament for the first time on Wednesday after suffering a life-threatening episode of sepsis that led to the amputation of his hands and feet.

Speaking to the BBC, the South Thanet MP recalled his experience of falling ill, his recovery and the shock of waking from an induced coma to find his limbs had turned completely black.

He says his arms and legs were “like plastic… you could almost hit them… they were black, drying, clenched together.”

“They managed to save above the elbows and above the knees,” he added. “So you could say I’m lucky.”

Now he wants to be known as the first ‘bionic MP’, after being fitted with prosthetic legs and hands.

‘A very strange blue’

It was on September 27 when 57-year-old Mackinlay started feeling unwell. He didn’t think much of it, took a Covid test (which came back negative) and went to bed early.

During the night he was seriously ill, but he still didn’t think it was anything serious.

However, as the night wore on, his wife Kati, a pharmacist, became concerned and tested his blood pressure and temperature.

By morning she noticed that his arms felt cold and she couldn’t feel a heartbeat. After calling an ambulance, Mr Mackinlay was admitted to hospital.

Within half an hour it had turned into what he calls “a very strange blue”. “My whole body, top to bottom, ears, everything, blue,” he says.

He had gone into septic shock. The MP was put into an induced coma that would last sixteen days.

His wife was told to prepare for the worst, with staff describing her husband as “one of the worst people they had ever seen”. His chances of survival were only 5%.

Image source, Craig Mackinlay

Image caption, Mr Mackinlay with his family in hospital

At his wife’s insistence, Mr Mackinlay was transported from his local hospital in Medway, Kent, to St Thomas’ in central London, directly opposite his workplace, the Houses of Parliament.

He remembers little of this, but what he does remember are the strange dreams that he believes were caused by morphine.

When he came to, the grim reality dawned on him.

When he woke up, he remembered hearing discussions about his arms and legs. “By then they had turned black… you could almost punch them,” he says, comparing them to the plastic of a cell phone.

He says he wasn’t surprised when he was told they might have to be amputated.

“I don’t have a medical degree, but I know what dead things look like. I was surprisingly stoic about it… I don’t know why I was. It could have been the different cocktail of drugs I was taking.”

‘A gloomy Christmas’

The operation – for all four amputations – took place on December 1. He remembers waking up after the procedures feeling strangely alert.

So alert that he wondered whether the amputations had even taken place. “But I woke up and looked down and you clearly realize that they had.”

Christmas was “bleak”, spent with his family, including his four-year-old daughter Olivia. “She adapted to it very easily,” says Mackinlay.

“Honestly, probably better than anyone else. I think children are so remarkably flexible.’

Image source, Craig Mackinlay

Image caption, Craig Mackinlay’s daughter Olivia, with her father’s new leg

Olivia has had to adapt to her father’s new prosthetic legs – one he has nicknamed Albert, after the doll used by war camp inmates in the 1950s film, Albert RN

Learning to walk with his prosthetics took time.

First he had to rebuild the muscles that had wasted away.

“My legs have never been big. I always say I have chicken legs, but now they are sparrow legs.

“There were no muscles on it at all, it was pretty horrible. You pick up your leg and you see a bone and kind of hanging.”

Once his prosthetic legs were attached, he gradually learned to walk again.

“After a very short time you think, ‘I can do this’.”

On February 28 – five months after he first felt ill – he was able to walk his first twenty steps without assistance.

Progress was inevitably a stop-start. He developed painful blisters in places where his skin had broken off and had to stop for a while. “That was very frustrating; for me, walking was my sign of success,” he says.

Image source, Craig Mackinlay

Image caption, Mr Mackinlay stayed at St Thomas’ Hospital, directly opposite the Houses of Parliament

What is sepsis?

Sepsis is a rare but serious condition that occurs when the body’s immune system overreacts to an infection and begins to attack its own tissues and organs.

Symptoms may include severe shortness of breath and slurred speech.

If sepsis is not treated in time, it can progress to septic shock and cause organ failure.

Mr Mackinlay says losing his hands has been the hardest thing to deal with.

“You don’t realize how much you do with your hands… use your phone, hold your child’s hand, touch your wife, do the gardening.”

He says his prosthetic hands are “great… but it will never be quite the same.

“So yes, the hands are a real loss.”

Like his new legs, his hands were originally supplied by the NHS, but he has since gone outside the NHS for new hands, likening the original prosthetic hands he was given to “something from the Middle Ages”.

“They’re just blunt objects. I looked at them and thought, ‘Well, I’m not sure what these are good for, other than breaking windows and bar fights.'”

In addition to the loss of his hands and feet, the sepsis has scarred Mr Mackinlay’s gums, loosening his front teeth, and on his face.

“I’m trying to grow a goatee to cover it up,” he says.

‘The bionic MP’

Although his attitude is largely positive, Mr Mackinlay admits he has had “low moments”.

“You have a little one every morning because you’re in the land of kink and you have a beautiful dream, and then you wake up and it’s ‘I have no hands.’

‘That is the realization every morning.

“It’s very easy to say – and I try to stick to it – there’s not much point in whining and complaining or getting down about the things you can’t do.

“You have to be cheerful and positive about the things you can do and I find that every day there is something new I can do.

“None of this would be possible without my wife… Without her I wouldn’t be where I am today.

Image caption, Kati, a pharmacist, was told by hospital staff to prepare for the worst

‘We (MPs) probably spend too much time in Westminster, away from our families, chasing this, that and the other.

“You now realize that the most important things are family, friends and children.”

Before entering Parliament, Mr Mackinlay worked as a chartered accountant. Originally a member of the pro-Brexit UK Independence Party, he was elected Conservative MP for South Thanet in 2015.

Despite what he has been through, Mackinlay still has plans to stand in the next election in his Kent constituency, which will be renamed Thanet East.

And he still has things he wants to do as an MP, most notably ensuring sepsis is recognized as quickly as possible and making it easier for amputees to get the prosthetics they need.

He also says he wants to become the ‘bionic MP’.

“When children come to Parliament’s fantastic education centre, I want them to put on their parents’ or teacher’s jacket or skirt and say: ‘I want to see the bionic MP today’.”